The majority of children would jump at any chance to pig out on pizza, ice cream, candy or peanut butter and jelly sandwiches. But not Landon Jones, a 12 year old from Iowa. For over a year, Landon has had a mysterious illness. He is just never hungry or thirst and he doesn’t eat or drink. This disorder is so rare that physicians believe he might .be only person in the world with the condition.
The 12 year old woke up one day and just wasn’t hungry or thirsty. He can taste, swallow and digest food normally, but his body no longer lets him know when he is hungry or thirsty.
His parents have held off on sharing this story for the sake of his privacy, but now they and his physician are desperate for answers so they are speaking out, reports CBS News medical contributor Dr. Holly Phillips.
Symptoms started without any warning a year ago. Landon woke up the morning of Oct. 14, 2013 saying that he had extreme chest congestion and dizziness. A scan of his chest showed that he had a bacterial infection in his left lung, and was successfully treated. But then he stopped eating.
Over the past year, the 6th grader has lost almost 40 percent of his body weight, plummeting from 104 pounds to just 67.
Landon and his family have gone from doctors to doctors in 5 cities, from their local pediatrician in Waterloo, Iowa, to the Mayo Clinic in Rochester, Minn. He has been given countess tests, including spinal tap, encephalogram (brain scans) and psychiatric evaluation and has been evaluated for a host of medical problems, including eating disorders and digestive problems.
This illness has left Landon weak and forced him to give up many of his most favorite activities, including playing the trombone since it makes him dizzy. He has missed dozens of days of school.
Doctors may have to insert a gastronomy tube in order to provide him with direct nourishment into his stomach.